Monday, May 15, 2017

my last day with the guy in the wheelchiar, i have been called in to run a meeting with his parents. an australian mother and a german father. instantly we connect as i talk about my days in west berlin, kraftwork and some german philosophers. 
they are quite political and i can respect their take upon the future f their son. i explain how to access the funding the ndis plan has suggested and how to deal with bureaucracy that obfuscates access which they seem appreciative about. later they are disappointed a staff member has called in sick which means they can't take their son to the therapeutic swimming pool. old captain mission throws down his pile of things to do, stands up and reveals his superhero costume by offering to help.
i drive down with the man and his mother, we get to the pool and i assist as best i can from the sidelines. it's amazing to watch this all happening and gain a little insight into how these parents work with their son. severe epilepsy has disfigured the man, his limbs are tightly contracted and in the pool the parents stretch them and attempt to reduce their rigidity.  
i'm not used to this level of disability, it's way out of my comfort zone however i am here. have to immerse myself in the whole thing and experience the situation.
i like this guy, i like the parents and despite my initial confrontation things have worked out very well. 

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